Olivia can not only imagine it, she lives it. As a chronic pain patient who uses opioids to help manage her pain, Olivia is worried that someone might try to steal the opioids she relies on to make her excruciating back pain at least palatable.
“You feel like a target,” she said.
Olivia’s concerns don’t end at her safety. They include what many pain patients see as a narrowing window of accessibility to medication due to tighter regulations that came as a direct result of opioid abuse. She’s watched as pharmacists hesitated to fill her prescriptions, she has endured skeptical looks and she even had to stomach an ill-informed suggestion that she may need to check into a drub rehab facility.
“If you take away pain medication, you’re just going to have a whole new epidemic of people in pain,” she said. “Live one day in the life of somebody that deals with it and your mind would be changed.”
Roy Barnes understands. He prescribes pain medication with a watchful eye because he has seen the New England town that he lives in change. He’s seen it slide. And that slide has inspired a worry within him, one that sometimes pulls the light from his voice and leaves him feeling uneasy about the future.
Barnes is a family physician. He has been for 30 years. And he’s conflicted. Now more than ever, he hesitates when he feels it is necessary to prescribe an opioid-based painkiller to one of his patients.
“I’m seriously worried about home invasion at this point in my community,” Barnes said of the town of 12,000 where he lives. “Desperation is the mother of invention. You just have to have enough time to find your way out of your dilemma.”
Of course, pain patients are not the only ones facing a dilemma. Physicians are, too. Regulations make it difficult for them to effectively treat chronic pain, while the undercurrent of possible abuse looms with every prescription.
“Doctors are fearful to prescribe pain medication if the patient requires it,” Cindy Steinberg, the national director of policy and advocacy for the U.S. Pain Foundation, said of the physicians she talks to. “It’s gotten to the point that doctors don’t want to even treat patients with chronic pain.”
Opioids certainly are a desperate dilemma. Pain patients need them, and sometimes unknowingly misuse them. Addicts abuse them, and will go to great lengths to get them. Policymakers debate about them and often just want to eliminate them altogether, while advocates work to educate the public about them. Pharmaceutical companies are trying to improve them, and public health organizations are collecting statistics and reporting on them.
And the statistics are, at best, unsettling. At worst? Absolutely crushing.
The Centers for Disease Control (CDC) reports that 142 Americans die every day from drug overdoses, of which two-thirds are linked to opioids. More Americans died from heroin-related causes than from gun-related homicides and car accidents combined, according to data collected by the CDC in 2015.
To offer perspective, the number of fatal drug overdoses in the U.S. is equal to this country enduring the losses it did on September 11th every three weeks.
“Our nation is in a crisis,” reads an initial report released in August 2017 by the President’s Commission on Combating Drug Addiction and the Opioid Crisis. “The opioid epidemic we are facing is unparalleled.”
Barnes is on the front line of that unparalleled epidemic. He practices in a part of the country that has been ravaged by opioid addiction, yet the town he is in isn’t that different than any of the other small towns that have been impacted by the same problem. He’s heard the heartbreaking stories of loss, and he’s seen the desperation illustrated by someone who is chasing their next high. It is with that knowledge that he worries for the safety of his elderly pain patients. He’s concerned they, and their full bottles of prescription medication, may become a target.
“There definitely is this undertow of drug abuse. There is a lack of respect for drugs,” Barnes said. “There’s a big problem in this country, but not everyone is on board on how to put this in a corner and make it go away.”
Dr. Steve Passik has seen it, too. His mother lived with debilitating, chronic pain and she ultimately succumbed to complications fro diabetes. His friend’s son became addicted to and eventually died from an overdose of opioids. So he can see the opioid crisis from both sides of the spectrum, one that needs a tough response to save lives and one that hopes that response doesn’t impact their quality of life or that of their loved ones.
And, as vice president of scientific affairs at Collegium, a pharmaceutical company that has developed an abuse-deterrent opioid, Passik wraps himself around an integrated view of the crisis.
“On both sides of the aisle, we are sort of united in grief,” Passik, referring to suffering chronic pain patients and families living with addiction. “No one wants to see someone go through the loss.”
Passik watched as chronic pain chipped away at his mother, an “amazingly persistent” woman who lived with diabetes and osteoarthritis for years. And he knows that due to the undertow of abuse, and rampant overdoses, that many doctors and pharmacies are leery of prescribing opioids, a medication that benefits untold numbers of the estimated 100 million Americans living with chronic pain.
Regulations designed to curb overdoses are pinching off accessibility for pain patients, many of whom rely on opioids to get through their day. Limited accessibility is one of Steinberg’s big concerns. As someone who lives with chronic pain due to a catastrophic back injury 17 years ago, Steinberg knows what patients go through to try and get the treatment they need.
Steinberg classified the current status of the delicate relationship between suffering pain patients and physicians who are skittish about prescribing opioids as “sad.” It seems, she said, that policymakers have prioritized the need to reduce overdoses by abusers at the expense of chronic pain patients like herself.
“Opioids don’t help everybody. They aren’t the only solution for pain, but they are an important option for pain,” Steinberg said. “I want them to remain available to people living with pain.”
Back at his New England practice, Barnes navigates pain management with a metered approach. If a certain opioid doesn’t work for one of his patients, he doesn’t automatically increase their dose. He reels it back in and looks for alternatives.
He knows, that as a physician, he is not obligated nor is he often able, to eliminate all of a patient’s pain. He also knows that some of the same opioids that help his patients could be deadly to those who abuse them and those who unknowingly misuse them.
It is the very definition of a quandary. And he hopes someone finds a remedy.
“I wouldn’t mind seeing a day when this is no longer a problem,” he said. “Is there a way to pull this back to center? That would be wonderful.”
Passik is hopeful. He sees grief as a common denominator, on all sides of the crisis. That hope is why the pain community recently launched a cooperative effort called A Call For A Change, designed to educate and advocate for improved pain management.
“One of these days, I just wish that the advocates on both sides would realize we are all motivated by grief, and if we came together in that grief, we might be able to come up with some solutions for the opioid crisis and the pain crisis that didn’t, sort of, put one person’s pain at a higher position than the other’s,” Passik said.